Baby born with her heart growing outside of her chest

Baby born with her heart growing outside of her chest

The newborn, who was born November 22 at Glenfield Hospital in Leicester, England, was delivered by Caesarean section several weeks premature with a rare and often fatal congenital condition called ectopia cordis, in which the heart is growing either completely or partially outside the chest cavity. It showed the baby's heart and part of her stomach were growing on the outside of her body.

"We had to do a lot of planning around the delivery, once it was clear that she was going to survive to be able to be born", said Dr Bu'Lock.

Fifty minutes later, Vanellope was deemed stable enough to undergo a series of surgeries with 50 anaesthetists, heart surgeons, and paediatricians, who put her heart most of the way back inside her chest. Her parents, Naomi Findlay and Dean Wilkins, discovered the news at a nine-week scan and were told a termination was their only option, the Guardian reported.

Vanellope is recovering from three extraordinary operations to relocate her heart from outside her chest to inside her body.

Naomi stated: "It was a genuine stun when the ultrasound demonstrated that her heart was outside her chest and frightening since we didn't recognize what might happen".

"'I'm glad I stuck to my guns not to terminate", her mother said.

Doctors have described how dozens of specialists worked together to help a baby who became the first in the United Kingdom to survive after being born with its heart outside its chest.

Dean Wilkins said: "She defying everything - it's beyond a miracle".

Mr Wilkins said: 'When she cried, we cried.

Babies born with this condition have a survival rate of less than 10% due to the risks of infections and other side effects, the hospital added.

It seems that she is truly a survivor just like little Vanellope.

Immediately after Vanellope was born, she was "immediately placed in a sterile plastic bag" to keep her organs sterile and tissues moist.

Doctors had to work to keep the heart safe and covered, so they can later perform surgery to put it back into the chest cavity and cover it with skin.

"In the future we may be able to put in some internal bony protection for her heart - perhaps using 3D printing or something organic that would grow with her".

Health Line website states that the condition affects about one in 126,000 births and treatment options are limited.

The medical procedure is extremely rare because most mothers faced with a diagnoses of ectopia cordis have an abortion.

"Both Naomi and I were holding our breath waiting for her to take her first breath; we didn't dare breath until she took her first breath", Wilkins, 43, said.

"The moment she was born I realized that we had made the right decision".

'I genuinely didn't think my baby would survive, but the staff at Glenfield have been awesome.

"In a way her quality gave me a quality to continue onward", she included.

"We know this is going to be a rollercoaster and have started to prepare ourselves for the hard times ahead, but we needed to give her a chance, and the team here have done that".

The couple named their baby after a character in the film Wreck-it Ralph.

Naomi said: "Vanellope in the film is a real fighter and at the end turns into a princess so we thought it was fitting".

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